What is MND?

MND stands for motor neurone disease and is a group of diseases which cause a loss of function (degeneration) of nerve cells which control muscles (so called motor neurons). These cells are located in the brain and the spinal cord. ALS (Amyotrophic lateral sclerosis) is particular form of motor neurone disease, often the abbreviations MND and ALS are used interchangeably.

The symptoms of motor neurone disease can vary a great deal between different individuals and involve weakness of particular muscle groups, such as the muscles of the legs, arms, throat and chest.

Although there is no cure available today there is intense research being conducted globally to find a cure. Despite the absence of a cure much progress has been made in improving the quality of life of patients living with motor neurone disease through specialised teams. These teams include neurologists, rehabilitation specialists, speech and language therapists, physiotherapists and a number of other specialised support services.

For these reasons it is very important that care for MND patients is delivered by specialised teams. Our ambition is to extend this support to all Malaysians nationwide.

Being given a diagnosis of MND, or going through a diagnostic workup to rule out MND are very distressing experiences. It is very important that patients have access to the information they need. While a lot of information is available online it is important for patients to speak to their doctors personally to gain the proper understanding of their individual situation.

If you have any questions about MND please do get in touch with us!

Our Goals

As a non-government organization we are supporting people living with MND through a variety of activities.
We are raising awareness among healthcare professionals and the general public through forums across the country. We believe it will require the understanding and effort of everyone to deliver care for patients with MND. We have conducted information events nationwide, most recently in Alor Setar, Ipoh and Penang
We are providing support to patients through our network of medical and non-medical volunteers and we are supporting healthcare professionals in the process of setting up MND services in their localities.
We also provide practical support to patients by loaning equipment such as portable ventilators, mobility aids and other items.

MND Malaysia welcome donations which can be bank into: 
Maybank Bhd
Account no:514 123 636 197
Payee: Persatuan Penyakit Motor Neuron

Persatuan Penyakit Motor Neuron Malaysia