What is SLE?

Systemic Lupus Erythematosus (SLE), or Lupus for short is a life-long, life-threatening autoimmune disorder that occurs when the body’s immune system turns against its own tissues for reasons that are still unknown.  It can cause severe damage to the body’s tissues and organs i.e. the joints, skin, kidneys, heart, lungs, blood vessels, brain, etc.  90% of SLE patients are women of child-bearing age.

Who is Persatuan SLE Malaysia?

Persatuan SLE Malaysia (PSLEM) is registered with the Registrar of Societies as a non-profit, charitable organisation set up to provide social and psychological support for people suffering from Systemic Lupus Erythematosus (SLE).

Starting with a small group of 10 doctors and patients in 1994, PSLEM today has more than 2,600 members all over Malaysia, comprising SLE patients, their families and healthcare professionals. PSLEM is recognised by the government as a charity and donations to the association are tax exempted.

Our Activities

We work in partnership with the corporate sector and the public to raise funds for our various activities:

i) The Lupus Information & Counselling Centre in Petaling Jaya, which also operates a 12-hour SLE helpline for SLE patients and members of the public all over Malaysia.

ii) PSLEM’s SLE patient support groups in Pulau Pinang, Johor Bahru, Kuching and Sandakan. PSLEM targets to have at least one patient support group in each state within the next 10 years.

iii) Training patients who are coping well as SLE para-counsellors to be on duty to provide free counselling services at major hospitals where SLE patients receive treatment.

iv) Patient education programmes to provide patients and their family members with better coping skills: group therapy sessions, talks, public forums, and family camps.

v) Public awareness programmes. With greater public awareness, SLE sufferers will be more likely to get an earlier diagnosis, thereby improving their chances of survival.

vi) Financial assistance for needy patients who have to undergo joint replacement and cataract operations due to the side effects of their corticosteroid treatment. The SLE Fund subsidises up to 90% of the cost of the patient’s prosthesis or lens implant.

How you can support us

1) Donate – we issue tax exemption receipts.  Click this link to donate on-line:  https://www.cimbclicks.com.my/TIBSEPWeb/fpxPaymentToNGO_add.do?payeeId=FPXNGOPSLEM

2) Sign-up as a volunteer – so we could have a pool of volunteers whom we could call upon to assist in our various activities.  Call us at tel. 03-7957 7672 or email us at [email protected]

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Persatuan Systemic Lupus Erythematosus (SLE) Malaysia